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Alexander Joseph Furst
Alex was diagnosed with Torticollis when he was 4
months old
and diagnosed with Plagiocephaly
at 5 months old.
Tuesday May 27th he will
start wearing a Cranio Cap (helmet) to reshape his head.
He will have to wear this
helmet for 22 hours out of the day for up to 4 months.
I thought it would be
interesting to track Alex's progress in pictures from before, during and after.
Torticollis
A parallelogram shape with a flattening on one side of the back and often a bulging forehead on that same side.
March 2009 Update
Still waiting on the blood tests.
Alex is showing significant delay with
his cognitive skills, motor skills and speech.
He qualifies for Eagan's Early Childhood Special
Education program and will start in April.
We started Alex on a gluten, casein, soy, egg, sugar and
dairy free diet and he is also seeing a CranioSacral Therapist for his Plagio.
Does Alex have Autism?
We don't know. What
we do know, is that we have been down this road before with
Alex's cousin, Ronan.
Thanks to Ronan, we knew the
"signs" and saw them in Alex.
Amber got the ball rolling on diet and
therapy and they say early intervention is the key.
This is not a road one would choose to go down.
But.. you know what? It Is What It Is.
You move forward and love them all the more.
My new motto, I picked up off the web.....All will be Okay... even if it isn't.
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February 2009 Update
Alex had his MRI done in early February and the results were normal. We are still waiting for the blood tests to come back.
December 2008 Update
Alex has had some testing done for developmental delay.
He had a hearing, vision and a developmental assessment check this last
month.
He had a EEG done testing for seizures. The test was done at home as he was hooked
up to it overnight to see if he was having night seizures.
No seizures, but they found he was
having asymmetrical waves on the right side of his brain when he was
drowsy and now the neurologist wants a MRI done.
His vision and hearing are fine. The assessment shows him to be at 8 months
for speech and they would like to see him in some occupational therapy.
My first taste of Cheetos.. Ohhhhh Boy! My mommy sure yelled at grandpa for giving them to me. |
I was SUPER BABY!!! for Halloween. |
We make a great pair! |
Grandma thinks I'm the cutest little thing ever. |
I'm getting around the house now. |
Amber and her boys. |
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Happy Birthday!! Alex |
WOW!!! This birthday stuff is pretty kewl! |
I'm so spoiled!! |
All hooked up for the EEG.
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Walking with my daddy. |
Yes, I'm a big boy! |
I had to have a second helmet and I wore it for another couple of months. I was teething and running fevers and couldn't wear it all the time like I was suppose to. I still have some asymmetry.
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Christmas day treats. |
We hope everybody had a Merry Christmas and wish you all a Happy Hew Year! |
Weeks 7 - 9
Again, I'm sorry for not updating like I
had planned.
The summer is going by so fast and we have been busy, busy.
Amber took Alex to the doctor on the 5th
of August and was told that Alex will be done with the helmet in 2 weeks.
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This what the top looks like. |
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YAY!!! Only 2 more weeks with helmet. |
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Happy Birthday! Colin
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Wrapping paper fun. |
Sucking on ice cubes sure helps the teething process. |
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Celebrating great grandma Betty's 80th B'day. |
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Amber and her boys
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I'm a travelin' guy now. |
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How's my head look?
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... Looking pretty good, eh?
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Grandpa likes to trap me.
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Week 5 & 6
I'm going to lump these two weeks together.
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And you thought you were only going to see pictures of my head.. |
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This sure helps when you're teething! |
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The top of the head is the last to re-shape. |
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Not so pointed anymore. YAY!! |
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This is what I really think of that helmet!!! |
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Grandma!! Not now. I'm watching my Backyardagins. |
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Soon, my right side will be just as nice. |
Cutting teeth isn't so fun. |
Hanging out with my big brother, Colin. He likes Backyargagins too. |
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Grandma!! You forgot to take the helmet off first. |
hey! It's not going to happen over night. |
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Are you tired of seeing my head?? |
You think I'm enjoying this?? |
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That helmet sure makes my head itch. |
Hey.. kicking my feet is fun. I better get all my splashing in now while they think it's still cute. |
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Gotta love the Razzzies |
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Grandma.. no one wants to see my TWO new toffers. |
Week 4
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Grandma, You trying for pictures again? |
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Can you see I'm rounding out? |
This is what I think of teething!!! |
Week 3
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Soccer Boy! |
Week 2
pictures taken 6-10-08
Sorry I'm late in getting these posted.
Do we have to do this now? |
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Grandma! Look at me. Are you sure you don't want pictures of my face?
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Yum!! |
Week 1
pictures taken 6-3-08
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Helmet Day
Tuesday May 27th 2008
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The helmet is going to re-shape my head. |
Waiting to see Bill. |
Bill!! What are you doing to me? |
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I'm not sure about this.... |
He's telling me I have to wear this thing for HOW LONG?? |
I think I want to leave now! |
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It's not so bad after all. How do I look? |
She sure likes to stretch my neck. |
Ahh... break time. |
2 weeks old - 6 months old
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Head shots.
I don't think his head is
meant to have top view pictures taken.
I've taken about 10
pictures and not one of them turned out.
So these pictures below
are side views.
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